TRIP TO JOHNS HOPKINS- PART 2

Well, we achieved what we wanted to at Johns Hopkins this week…REASSURANCE. We just left the office of the Pediatric Pulmonologist, Dr. Sterni, who thought that Max is doing great. She said his lungs sound perfect and his chest is on the large size for achondroplasia. She honestly thinks we have a higher probability of Max having problems related to the fact that Eric had issues with wheezing and allergies as a child and comes from a highly atopic family more than we will have issues from Max having achondroplasia. She was GREAT!! She looked at Max’s sleep study and knew the doctor from Rainbow who read it. She said that doctor is like the guru in reading sleep studies. She said she sometimes wonders who interprets sleep studies at other hospitals and that some people even come to Johns Hopkins just to make sure it is done and interpreted correctly, but that she knows ours was read by one of the best. We were very pleased with that information! And of course they thought Max was SUPER cute too!!

So, in all, all the doctors that we have seen here have been wonderful. They think Max is doing great and have no reason to think that will change. We need to be vigilant about watching for any changes in his breathing or his head circumference but they are very encouraged by how he looks now. I am so glad we are hooked in with such a great group of doctors. They like to see their patients every 6 months , so we will plan on another visit around February. I may do that visit alone if there are no issues so that Eric can be home with Aiden and Emmi. It was hard to leave them and I know it was hard for them too.

Now, I feel like we can go home and really ENJOY Max without worrying about all the things I was so worried about before we came. He is an amazing little one and I want to just enjoy him being an infant:-)

We did get to enjoy this trip a little too! We went to DC yesterday and wandered through the Smithsonian Museam of Natural History. They had a really cool exhibit about bones there. They showed how they do forensics using bones and had lots of bone samples. Most of the museums closed early yesterday so we didn't get to see too much but it was a beautiful day to just walk around and look at the sights. No Obama sightings though!! We had dinner at a quaint little Italian restaurant and then headed back to the hotel. Today before our appointment, we wandered around downtown Baltimore and ate lunch outside. It was a fun trip, although we wish Aiden and Emmi could have been with us too!

Well, we just got on the freeway to drive home. What a BEAUTIFUL day for a drive!!! It is really a lovely drive and we even get to drive through a mountain…which may give me a bit of a panic attack if I really think about all the weight of the mountain above my head…so, I am going to just push that thought out of my mind…